Meet River

River is a little boy who absolutely loves water. Whether he’s splashing in the pool with Mom and Dad, playing with the garden hose, or enjoying a bubbly bath—if it involves water, he’s all in.

Born in 2020, River’s mom noticed he was missing milestones. River was eventually diagnosed with ATRX Syndrome, a rare genetic condition that primarily affects boys. It’s caused by a change in the ATRX gene, which helps regulate how DNA is used inside our cells.

River has defied the odds by learning to walk, point to the things he wants, and even hold a spoon to feed himself. Now, he’s working hard in speech therapy, learning to form basic language skills—and making progress every day.

But what truly sets River apart is his spirit. He is one of the happiest, most loving, and cuddly kids you could ever meet. He delights in hugs and kisses, giggles endlessly when Daddy tickles him on the couch and loves wrestling playfully with him too. With Mom, River is gentle and affectionate, especially when running his fingers through her long hair.

River fills every day with joy, resilience, and love. He’s a reminder of the beauty in life’s little victories and the power of a smile.