Meet Mikey!

A Fighter From the Very Beginning

Mikey’s journey began with what his family thought would be a short five-week stay away from home. Instead, it became a months-long fight filled with unexpected challenges. Just three days into his hospital stay, Mikey required emergency ECMO and underwent surgery the following day. Genetic testing eventually revealed that Mikey has Pfeiffer Syndrome, a rare condition affecting the development of the skull bones.

After multiple procedures and breathing complications, he received a tracheostomy, which allowed him to breathe safely and finally begin to thrive. Since then, Mikey has continued to face hospitalizations, surgeries, and even an airlift, but he keeps fighting forward. His care requires around-the-clock attention, with his parents taking shifts throughout the night to keep him safe and comfortable.

Mikey has already overcome more than most people face in a lifetime. His story is one of perseverance and a family who refuses to stop fighting for their little boy.